Patients’ participation is crucial to the success of such an initiative, and without it, the CSRG would not be able to realize any of its goals. If you live in Canada, were ever diagnosed with scleroderma by a rheumatologist, speak English or French, and would like to help us by being part of the Registry, you can talk to your own rheumatologist about it and ask him/her to refer you to a rheumatologist, member of the CSRG, to be seen for the study once a year. We have a CSRG member in many major Canadian cities. Please note that members of the CSRG will only see you on a yearly basis for the Registry and do not offer follow-up treatments if they are not your primary rheumatologist. Your own rheumatologist’s full collaboration is therefore essential. The CSRG member and your rheumatologist will work as a team to offer you the best treatment possible. Registry patients are seen on a yearly basis by the closest participating rheumatologist for a thorough examination and routine investigations. They also answer a questionnaire inquiring mainly about their medical history, their physical and emotional symptoms, and their functional abilities.